Multistakeholder Convenings Reveal Systemic Neglect and Unheard Pain in Endometriosis Care for Black Women, Leading to Research Roadmap
(February 2025)
Our healthcare system is failing Black women living with endometriosis. This chronic inflammatory disease, which often leads to severe pelvic pain, painful periods, and infertility, disproportionately impacts Black women, who experience longer delays to diagnosis,




“When you’re in healthcare, data is what moves the needle. Having quantitative or qualitative patient experience data as someone on the ground in healthcare and being able to go to your leadership and say, ‘Look how we’re performing,’ or ‘Look what this patient said about this experience,’ that kind